Tag: Kortney Rose Foundation

Racing To Find Cures for DIPG Brain Tumors in Children

Diffuse Intrinsic Pontine Glioma (DIPG) is a rare form of pediatric brain tumor located in the pons (middle) of the brain stem. “Glioma” is a general term used to describe any tumor that develops within glial tissue, a type of supportive tissue that keeps neurons in place and functioning.   According to the Dana-Farber/Boston Children’s…

“Four Pennies” by Swifty Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org   By Patti Gustafson, Swifty Foundation Every long and difficult journey starts with…

“Defining Moments” by the Kortney Rose Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of families, foundations, and researchers to find cures for pediatric brain tumors. If you would like to share your story as a guest blogger, please email moulderr@email.chop.edu.    By Kristen Gillette, Founder/Executive Director of The Kortney Rose Foundation I’ve had many defining moments…

Kortney’s Challenge Shows Support for the CBTTC

On August 12, 2016, The Kortney Rose Foundation (KRF) announced records for attendance and funds raised at its 11th annual family fun run/walk to support research for pediatric brain cancer, which is the number one tumor-related cause of death in children under age 19. Kortney’s Challenge drew 590 supporters to Monmouth Park in New Jersey while raising over $71,000…