Tag: DIPG

‘Success’ Means Nothing Unless it Translates to Better Outcomes for our Kids

A Message from the CBTTC’s Scientific Co-Chair Dr. Michael Prados, MD Neuro-Oncologist, UCSF Benioff Children’s Hospital Professor and Charles B. Wilson Endowed Chair of Neurological Surgery; UCSF Weill Institute for Neurosciences Co-Project Leader; Pacific Pediatric Neuro-Oncology Consortium (PNOC) Scientific Co-Chair; Children’s Brain Tumor Tissue Consortium (CBTTC)   I first became interested in neuro-oncology in the…

Racing To Find Cures for DIPG Brain Tumors in Children

Diffuse Intrinsic Pontine Glioma (DIPG) is a rare form of pediatric brain tumor located in the pons (middle) of the brain stem. “Glioma” is a general term used to describe any tumor that develops within glial tissue, a type of supportive tissue that keeps neurons in place and functioning.   According to the Dana-Farber/Boston Children’s…

“Holidays & Hope” by The Kortney Rose Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org By Kristen Gillette, Founder/Executive Director, The Kortney Rose Foundation From November 28, 2018…

“What I’m Aware of In My 8th Year of Brain Cancer Awareness” by Dragon Master Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org   By Amanda Haddock, President, Dragon Master Foundation It is Brain Tumor Awareness…

CBTTC Investigators Discover Molecule to Improve Treatment of DIPG

CBTTC investigators from Ann & Robert H. Lurie Children’s Hospital of Chicago, including CBTTC Scientific Chair Dr. Rishi Lulla and Dr. Amanda Saratsis of the CBTTC’s scientific committee, joined researchers at Northwestern University Feinberg School of Medicine in discovering a molecule which stops the growth of Diffuse Intrinsic Pontine Gliomas (DIPG). DIPG is an especially…