Tag: data sharing

It Takes a Village: How Clinicians, Researchers, and Patient Families Can Collaborate Toward Cures for Childhood Brain Tumors

A Message from the CBTTC Executive Committee Chair As I reflect on the past year – my first as Executive Committee Chair of the Children’s Brain Tumor Tissue Consortium (CBTTC) – I am filled with gratitude for the opportunity to serve and support this diverse community of physicians, scientists, patient families and philanthropic supporters, who…

#BrainTumorAwarenessMonth: Increased Support of Collaborative Brain Tumor Research is Critical to Improving Treatments and Discovering Cures for Children

  Every May, foundations, patient groups, hospitals, and researchers around the world call on the public to “Go Gray in May” to raise awareness about Brain Tumors and to encourage public support for research into these often devastating and life-threatening diseases in children and adults. According to the Central Brain Tumor Registry of the United…

PedcBioPortal Cancer Visualization

    June 6, 2016 Contributing Authors: Pichai Raman,  Angela J Waanders, Sabine Mueller, Adam C Resnick,  and John Maris on behalf of the CBTTC, PNOC and SU2C-St. Baldrick’s Pediatric Cancer Dream Team The pediatric cancer genome is severely under-represented in genomic databases as existing data portals have primarily focused on adult cancers. Furthermore, large-scale data…

Visit to the White House to discuss Data Sharing

Jay Storm Chief, Division of Neurosurgery joined Children’s Hospital of Philadelphia  CEO Madeline Bell and fellow cancer researcher John Maris Giulio D’Angio Chair in Neuroblastoma Research at the White House to talk with Vice President Joe Biden about the CBTTC, data sharing, immunotherapy and big data.