Tag: brain tumor research

Racing To Find Cures for DIPG Brain Tumors in Children

Diffuse Intrinsic Pontine Glioma (DIPG) is a rare form of pediatric brain tumor located in the pons (middle) of the brain stem. “Glioma” is a general term used to describe any tumor that develops within glial tissue, a type of supportive tissue that keeps neurons in place and functioning.   According to the Dana-Farber/Boston Children’s…

It Takes a Village: How Clinicians, Researchers, and Patient Families Can Collaborate Toward Cures for Childhood Brain Tumors

A Message from the CBTTC Executive Committee Chair As I reflect on the past year – my first as Executive Committee Chair of the Children’s Brain Tumor Tissue Consortium (CBTTC) – I am filled with gratitude for the opportunity to serve and support this diverse community of physicians, scientists, patient families and philanthropic supporters, who…

#BrainTumorAwarenessMonth: Increased Support of Collaborative Brain Tumor Research is Critical to Improving Treatments and Discovering Cures for Children

  Every May, foundations, patient groups, hospitals, and researchers around the world call on the public to “Go Gray in May” to raise awareness about Brain Tumors and to encourage public support for research into these often devastating and life-threatening diseases in children and adults. According to the Central Brain Tumor Registry of the United…

Children’s Brain Tumor Tissue Consortium Launches First-of-Its-Kind Pediatric Brain Tumor Atlas

Today, the CBTTC announced the launch of the Pediatric Brain Tumor Atlas, A dataset of more than 2,500 childhood brain tumor samples will be available to researchers within an open-access, collaborative and cloud-based environment PHILADELPHIA, Sept. 10, 2018  — One of the world’s most comprehensive collections of childhood brain tumor data is now available to researchers…

“Thirteen Years” by Wylie’s Day Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org   By Stephanie Strotbeck, Trustee, Wylie’s Day Foundation 2018 is the year…

“Shaving for Hope” by Swifty Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org   By Patti Gustafson, Michael’s  Mom and Chief Operating Officer, Swifty Foundation…

“What No Parent Should Ever Have to Hear”

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of families, foundations, and researchers to find cures for pediatric brain tumors. If you would like to share your story as a guest blogger, please email moulderr@email.chop.edu.    By Mary Brandle, Christopher Brandle Joy of Life Foundation As a parent, hearing the…

“What to Say When You Don’t Know What to Say” by the Swifty Foundation

Each month, the Children’s Brain Tumor Tissue Consortium’s lab chat will highlight the stories and contributions of families, foundations, and researchers to find cures for pediatric brain tumors. If you would like to share your story as a guest blogger, please email moulderr@email.chop.edu.    By Patti Gustafson, Swifty Foundation Wonder what to say to a…