Category: Research

Racing To Find Cures for DIPG Brain Tumors in Children

Diffuse Intrinsic Pontine Glioma (DIPG) is a rare form of pediatric brain tumor located in the pons (middle) of the brain stem. “Glioma” is a general term used to describe any tumor that develops within glial tissue, a type of supportive tissue that keeps neurons in place and functioning.   According to the Dana-Farber/Boston Children’s…

It Takes a Village: How Clinicians, Researchers, and Patient Families Can Collaborate Toward Cures for Childhood Brain Tumors

A Message from the CBTTC Executive Committee Chair As I reflect on the past year – my first as Executive Committee Chair of the Children’s Brain Tumor Tissue Consortium (CBTTC) – I am filled with gratitude for the opportunity to serve and support this diverse community of physicians, scientists, patient families and philanthropic supporters, who…

#BrainTumorAwarenessMonth: Increased Support of Collaborative Brain Tumor Research is Critical to Improving Treatments and Discovering Cures for Children

  Every May, foundations, patient groups, hospitals, and researchers around the world call on the public to “Go Gray in May” to raise awareness about Brain Tumors and to encourage public support for research into these often devastating and life-threatening diseases in children and adults. According to the Central Brain Tumor Registry of the United…

Biden Cancer Summit- Dr. Jay Storm Presents CBTTC’s Commitment

On Friday, September 21st, Dr. Phillip “Jay” Storm joins the Biden Cancer Community Summit in Washington D.C. to present the Children’s Brain Tumor Tissue Consortium’s (CBTTC) Pediatric Brain Tumor Atlas (PBTA) Kids First Data Resource Center’s commitment to improving childhood disease research.   “The Biden Cancer Initiative is a great opportunity to highlight the open…

“Milestones” by Christopher Brandle Joy of Life Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org   By Mary Brandle, Christopher’s mother, Secretary of Christopher Brandle Joy of…

“Four Pennies” by Swifty Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org   By Patti Gustafson, Swifty Foundation Every long and difficult journey starts with…

“Collaboration” by The Lilabean Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org By Nicole Giroux, Executive Director, The Lilabean Foundation for Pediatric Brain Cancer…

“This Is Us” by the Kyle Daniel Kerpan Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers in “Collaborative Corner” to find cures for pediatric brain tumors.  If you would like to share your story as a guest blogger, please email communications@cbttc.org By Joan Kerpan, Kyle’s Mom & Founder, Kyle Daniel Kerpan Foundation This…

“Letting Go” by Grayson Saves Foundation

Each month, the Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of families, foundations, and researchers to find cures for pediatric brain tumors. If you would like to share your story as a guest blogger, please email communications@cbttc.org By Jaclyn Savery, Grayson Saves Foundation The leaves are changing from that surreal green of summer to…