CBTTC and PNOC Investigators Join Patient Advocates in the U.S. Capital to Raise Awareness for DIPG Research
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On Thursday, February 13, 2020, in the Gold Room of the Rayburn House Office Building in Washington, DC, diffuse intrinsic pontine glioma (DIPG) patient and family advocates joined national experts in childhood brain tumor research as well as representatives from government and industry at a Congressional Briefing titled DIPG, Pediatric Brain Cancer and the Importance…
OpenPBTA: A New Collaborative Effort to Accelerate Discoveries Empowered by the Pediatric Brain Tumor Atlas
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According to the World Health Organization, over 300,000 children and adolescents under the age of 20 are diagnosed with cancer worldwide each year. In the United States, an average of 1 in every 285 children will develop cancer before the age of 20. While overall progress has been made, both nationally and internationally, brain tumors…
CBTTC Guest Blog: Challenges and Opportunities in Childhood Ependymoma Research
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CBTTC Guest Blogger: Pablo G. Cámara, PhD. Assistant Professor of Genetics University of Pennsylvania, Perlman School of Medicine CBTTC Investigator It is hard to conceive an event in life causing greater suffering and distress than learning one’s child has been diagnosed with cancer. Even more distressing to families and clinicians alike are the limited…
Pediatric Ependymoma Brain and Spinal Cord Tumors, and the Research Underway to Cure Them
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Ependymoma tumors are the third most common form of brain cancer in children and the most common form of pediatric spinal cord tumor, accounting for approximately 9% or all pediatric brain cancer diagnoses. These tumors can occur at any age, but appear most often in young children around age 3. While the primary cause of…
Proteomic Dataset Release of the CPTAC and CBTTC Collaborative Pediatric Brain Tumor Pilot Study
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To view this announcement from the National Cancer Institute’s Office of Cancer Clinical Proteomics Research, visit https://proteomics.cancer.gov/news_and_announcements/proteomic-dataset-release-cptac-and-cbttc-collaborative-pediatric-brain-tumor July 2, 2019 While it’s a common misconception that all tumors in the brain are the same, there are more than 120 subtypes of brain cancers with very diverse features and diagnosis. In children, brain tumors are the leading…
Q&A with CBTTC Scientific Co-Chair, Dr. Javad Nazarian: Addressing Challenges in DIPG Research
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Diffuse Intrinsic Pontine Glioma (DIPG) brain stem tumors are among the most deadly form of pediatric cancer, affecting approximately 200-400 children in the US each year. While a diagnosis of DIPG is fairly rare, there is no known cure, and a 5-year survival rate of less than 1%. On average, DIPGs become fatal about 9…
Racing To Find Cures for DIPG Brain Tumors in Children
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Diffuse Intrinsic Pontine Glioma (DIPG) is a rare form of pediatric brain tumor located in the pons (middle) of the brain stem. “Glioma” is a general term used to describe any tumor that develops within glial tissue, a type of supportive tissue that keeps neurons in place and functioning. According to the Dana-Farber/Boston Children’s…
5th Annual CBTTC Investigator Meeting – Note from the Executive Board Chair
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Thank you to everyone for making this year’s meeting a productive, interactive event. To ensure that we continue the momentum, I strongly encourage each of you to help me find the “champions” for the suggested working groups: 1) think tank for rapid translation into clinical trials, and 2) early stage investigator support. We need someone…
It Takes a Village: How Clinicians, Researchers, and Patient Families Can Collaborate Toward Cures for Childhood Brain Tumors
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A Message from the CBTTC Executive Committee Chair As I reflect on the past year – my first as Executive Committee Chair of the Children’s Brain Tumor Tissue Consortium (CBTTC) – I am filled with gratitude for the opportunity to serve and support this diverse community of physicians, scientists, patient families and philanthropic supporters, who…
#BrainTumorAwarenessMonth: Increased Support of Collaborative Brain Tumor Research is Critical to Improving Treatments and Discovering Cures for Children
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Every May, foundations, patient groups, hospitals, and researchers around the world call on the public to “Go Gray in May” to raise awareness about Brain Tumors and to encourage public support for research into these often devastating and life-threatening diseases in children and adults. According to the Central Brain Tumor Registry of the United…