Author: Jonathan Waller

‘Success’ Means Nothing Unless it Translates to Better Outcomes for our Kids

A Message from the CBTTC’s Scientific Co-Chair Dr. Michael Prados, MD Neuro-Oncologist, UCSF Benioff Children’s Hospital Professor and Charles B. Wilson Endowed Chair of Neurological Surgery; UCSF Weill Institute for Neurosciences Co-Project Leader; Pacific Pediatric Neuro-Oncology Consortium (PNOC) Scientific Co-Chair; Children’s Brain Tumor Tissue Consortium (CBTTC)   I first became interested in neuro-oncology in the…

CBTTC and PNOC Investigators Join Patient Advocates in the U.S. Capital to Raise Awareness for DIPG Research

On Thursday, February 13, 2020, in the Gold Room of the Rayburn House Office Building in Washington, DC, diffuse intrinsic pontine glioma (DIPG) patient and family advocates joined national experts in childhood brain tumor research as well as representatives from government and industry at a Congressional Briefing titled DIPG, Pediatric Brain Cancer and the Importance…

Q&A with Oligo Nation Co-Founder Brock Greene

The Children’s Brain Tumor Tissue Consortium highlights the stories and contributions of patient families, clinicians and researchers as part of “Collaborative Corner”. If you would like to share your story as a guest blogger, please email communications@cbttc.org Q&A with Brock Greene, Co-founder of Oligo Nation, and father of two sons who have experienced brain tumors.  …

OpenPBTA: A New Collaborative Effort to Accelerate Discoveries Empowered by the Pediatric Brain Tumor Atlas

According to the World Health Organization, over 300,000 children and adolescents under the age of 20 are diagnosed with cancer worldwide each year. In the United States, an average of 1 in every 285 children will develop cancer before the age of 20. While overall progress has been made, both nationally and internationally, brain tumors…

Racing To Find Cures for DIPG Brain Tumors in Children

Diffuse Intrinsic Pontine Glioma (DIPG) is a rare form of pediatric brain tumor located in the pons (middle) of the brain stem. “Glioma” is a general term used to describe any tumor that develops within glial tissue, a type of supportive tissue that keeps neurons in place and functioning.   According to the Dana-Farber/Boston Children’s…